Seven-year-old Waverley lives in Winnipeg and enjoys grade 2. She lives with Rett Syndrome, a genetic neurological disorder that causes developmental reversals, especially with expressive language and hand use. It occurs almost exclusively in girls and can be misdiagnosed as autism or cerebral palsy. Rett Syndrome affects Waverley’s speech, and fine and gross motor skills. She also lives with a seizure disorder.
Despite her challenges, Waverley is fun loving and positive. She loves swimming, playing on her swing-set and with friends, and going to the movies with her family.
Last year, Waverley received a Freedom Concepts bike funded by Children’s Rehabilitation Foundation. She also receives many services at the Rehabilitation Centre for Children (RCC). The Prosthetics and Orthotics department created custom ankle-foot orthotics for her, and the Mechanical Design department modified chairs to help her sit. The L.I.F.E. program lent the family a special floatation device to help Waverley learn to swim. In the spring and summer, Waverley is a regular participant in RCC’s Horticultural Therapy class.
Waverley will be the Parade Marshall at RBC Cruisin’ Down the Crescent this year, and will appear in various tv, print and billboard campaigns. Look for her photo and story throughout Manitoba!
This is a student created video introducing the Children’s Rehabilitation Foundation’s 2012 Child Representative. For more information on the Children’s Rehabilitation Foundation, please visit them online at: http://www.crf.mb.ca/ or http://www.youtube.com/user/childrensrehab.
Please support the 16th Annual RBC Cruisin’ Down the Crescent on June 10th, 2012.